Community and
Advocacy
Build a strong, supportive network that empowers individuals and families affected by GRN-FTD. Act as a bridge to scientific knowledge, expertise, and research opportunities while advocating for policies that enhance awareness, early detection, and comprehensive care.
Education and
Awareness
Increase understanding of GRN-FTD among the public, healthcare providers, and policymakers. Raise awareness of symptoms, challenges, and the profound human impact of the disease, while amplifying the lived experiences of those affected.
Resources and
Support
Provide individuals, especially those who are presymptomatic or at risk, with access to essential tools, information, and networks. Ensure families can navigate their GRN-FTD journey with the resources they need for informed decision-making and future planning.
